Skip to content
2018
Volume 75, Issue 1
  • ISSN: 0010-096X
  • E-ISSN: 1939-9006
side by side viewer icon HTML

Abstract

Composed in a series of letters, this essay explores the interdependent knowledge and survival work of crip communities. The authors discuss their experiences of myalgic encephalomyelitis (ME or ME/CFS) in a practice of Akemi Nishida’s “bed activism,” which challenges ableist demands for productivity from spaces of rest and care. Hsu and Nish ask what we lose—in intellectual and cultural growth and in actual lives—when academic spaces continue to devalue physical and cognitive difference. The resulting conversation considers illness as both an inevitability of lived experience and something exacerbated and ignored by academic spaces. It then explores how crip communities expand definitions of knowledge and knowledgemaking—offering wisdom that is not only valuable for a more inclusive profession but also necessary for a world increasingly sickened by extractive economies.

Loading

Article metrics loading...

/content/journals/10.58680/ccc202332669
2023-09-01
2024-05-05
Loading full text...

Full text loading...

/deliver/fulltext/ccc/75/1/collegecompositionandcommunication32669.html?itemId=/content/journals/10.58680/ccc202332669&mimeType=html&fmt=ahah

References

  1. “An Interview with JD Davids: Lessons from an Illder (Chronically Ill Elder) on Pride, Activism, and Accessibility.” ME Action, 14 Jun 2020, https://www.meaction.net/2020/06/24/an-interview-with-jd-davids-lessons-from-an-illder-chronically-ill-elder-on-pride-activism-and-accessibility/.
    [Google Scholar]
  2. Arellano Sonia C. “Quilting as a Qualitative, Feminist Research Method: Expanding Understandings of Migrant Deaths.” Rhetoric Review, vol. 41, no. 1 2022, pp 17–30. https://doi.org/10.1080/07350198.2021.2002058.
    [Google Scholar]
  3. Bhui Kamaldeep S., et al. “Chronic Fatigue Syndrome in an Ethnically Diverse Population: The Influence of Psychosocial Adversity and Physical Inactivity.” BMC Medicine, vol. 9, no. 1 2011, p 26. https://doi.org/10.1186/1741-7015-9-26.
    [Google Scholar]
  4. Bonilla H., et al. Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Is Common in Post-Acute Sequelae of SARS-CoV-2 Infection (PASC): Results from a Post-COVID-19 Multidisciplinary Clinic. preprint, Infectious Diseases (except HIV/AIDS), 4 Aug 2022 https://doi.org/10.1101/2022.08.03.22278363.
    [Google Scholar]
  5. Bruce La Marr Jurelle. How to Go Mad without Losing Your Mind: Madness and Black Radical Creativity. Duke UP 2021.
    [Google Scholar]
  6. Calafell Bernadette Marie. “Mentoring and Love: An Open Letter.” Cultural Studies ↔ Critical Methodologies, vol. 7, no. 4 2007, pp 425–41. https://doi.org/10.1177/1532708607305123.
    [Google Scholar]
  7. CDC. “Disability Impacts All of Us.” Centers for Disease Control and Prevention, 28 Oct 2022, https://www.cdc.gov/ncbddd/disabilityandhealth/infographic-disability-impacts-all.html.
    [Google Scholar]
  8. Chatterjee Piya, and Maira Sunaina. “The Imperial University: Race, War, and the Nation-State.” The Imperial University: Academic Imperialism and Scholarly Dissent. U of Minnesota P 2014, pp 1–50.
    [Google Scholar]
  9. Chen Mel Y. “Brain Fog: The Race for Cripistemology.” Journal of Literary & Cultural Disability Studies, vol. 8, no. 2 2014, pp 171–84. https://doi.org/10.3828/jlcds.2014.14.
    [Google Scholar]
  10. Clare Eli. Brilliant Imperfection: Grappling with Cure. Duke UP 2017.
    [Google Scholar]
  11. Ducharme Jamie. “Long COVID Experts and Advocates Say the Government Is Ignoring ‘the Greatest Mass-Disabling Event in Human History.’” Time, 19 Sept 2022, https://time.com/6213103/us-government-long-covid-response/.
    [Google Scholar]
  12. Gibson Andrea. “Your Life.” Lord of the Butterflies, Button Poetry 2018, pp 3–6.
    [Google Scholar]
  13. Grigely Joseph. “The Neglected Demographic: Faculty Members with Disabilities.” Chronicle of Higher Education, 27 June 2017, https://www.chronicle.com/article/the-neglected-demographic-faculty-members-with-disabilities/.
    [Google Scholar]
  14. Hasnain Rooshey, et al. “Disaggregating the Asian ‘Other’: Heterogeneity and Methodological Issues in Research on Asian Americans with Disabilities.” Societies, vol. 10, no. 3 2020, p 58. https://doi.org/10.3390/soc10030058.
    [Google Scholar]
  15. Hawkins Ames. These Are Love(d) Letters. Wayne State UP 2019.
    [Google Scholar]
  16. Hidalgo Alexandra, et al. “Principles in Cultural Rhetorics Scholarship.” Constellations, 11 May 2021, https://constell8cr.com/conversations/cultural-rhetorics-scholarship/.
    [Google Scholar]
  17. Herman Jody L., et al. How Many Adults and Youth Identify as Transgender in the United States? UCLA School of Law Williams Institute 2022.
    [Google Scholar]
  18. Ho Sandy, et al. “Access Is Love.” Disability Intersectionality Summit. https://www.disabilityintersectionalitysum mit.com/access-is-love/. Accessed 15 Jan 2023.
    [Google Scholar]
  19. Hsu V. Jo. Constellating Home: Trans and Queer Asian American Rhetorics. Ohio State UP 2022.
    [Google Scholar]
  20. Hsu V. Jo. “Toward QTPOC Community: A Theory in the Flesh, an Open Letter, a Closing Wound.” Rhetoric, Politics & Culture, vol. 1, no. 1 2021, pp 27–33.
    [Google Scholar]
  21. Jason Leonard A., Katz Ben Z., et al. “The Prevalence of Pediatric Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in a Community-Based Sample.” Child & Youth Care Forum, vol. 49, no. 4 2020, pp 563–79. https://doi.org/10.1007/s10566-019-09543-3.
    [Google Scholar]
  22. Jason Leonard A., and Dorri Joseph A.. “ME/CFS and Post-Exertional Malaise among Patients with Long COVID.” Neurology International, vol. 15, no. 1 2022, pp 1–11. https://doi.org/10.3390/neurolint15010001.
    [Google Scholar]
  23. Jason Leonard A., Richman Judith A., et al. “A Community-Based Study of Chronic Fatigue Syndrome.” Archives of Internal Medicine, vol. 159, no. 18 1999, p 2129–37. https://doi.org/10.1001/archinte.159.18.2129.
    [Google Scholar]
  24. Kafai Shayda. Crip Kinship: The Disability Justice & Art Activism of Sins Invalid. Arsenal Pulp P 2021.
    [Google Scholar]
  25. King Lisa. “Sovereignty, Rhetorical Sovereignty, and Representation: Keywords for Teaching Indigenous Texts.” Survivance, Sovereignty, and Story: Teaching American Indian Rhetorics edited by King Lisa et al., Utah State UP 2015, pp 17–34.
    [Google Scholar]
  26. Lorde Audre. The Cancer Journals. 2nd ed., Aunt Lute Books 1980.
    [Google Scholar]
  27. Miller Rachel Wilkerson. “What Does It Mean to Really, Truly Rest?” Self, 22 Dec 2022, https://www.self.com/story/what-does-rest-mean.
    [Google Scholar]
  28. Mingus Mia. “Access Intimacy, Interdependence and Disability Justice.” Leaving Evidence, 12 Apr 2017 https://leavingevidence.wordpress.com/2017/04/12/access-intimacy-interdependence-and-disability-justice/.
    [Google Scholar]
  29. Mingus Mia. “You Are Not Entitled to Our Deaths: COVID, Abled Supremacy & Interdependence.” Leaving Evidence, 16 Jan 2022, https://leavingevidence.wordpress.com/2022/01/16/you-are-not-entitled-to-our-deaths-covid-abled-supremacy-interdependence/.
    [Google Scholar]
  30. Nishida Akemi. Just Care: Messy Entanglements of Disability, Dependency, and Desire. Temple UP 2022.
    [Google Scholar]
  31. Ono Kent A. “A Letter/Essay I’ve Been Longing to Write in My Personal/Academic Voice.” Western Journal of Communication, vol. 61, no. 1 1997, pp 114–25. https://doi.org/10.1080/10570319709374566.
    [Google Scholar]
  32. Piepzna-Samarasinha Leah Lakshmi. The Future Is Disabled: Prophecies, Love Notes, and Mourning Songs. Arsenal Pulp P 2022.
    [Google Scholar]
  33. Povinelli Elizabeth A. Economies of Abandonment: Social Belonging and Endurance in Late Liberalism. Duke UP 2011.
    [Google Scholar]
  34. Powell Malea, et al. “Our Story Begins Here: Constellating Cultural Rhetorics.” enculturation, no. 18, 25 Oct 2014, http://enculturation.net/our-story-begins-here.
    [Google Scholar]
  35. Pendergrast Tricia, et al. “Housebound versus Nonhousebound Patients with Myalgic Encephalomyelitis and Chronic Fatigue Syndrome.” Chronic Illness, vol. 12, no. 4 2016, pp 292–307. https://doi.org/10.1177/1742395316644770.
    [Google Scholar]
  36. Riley-Mukavetz Andrea. “Developing a Relational Scholarly Practice: Snakes, Dreams, and Grandmothers.” College Composition and Communication, vol. 71, no. 4 2020, pp 545–65.
    [Google Scholar]
  37. Simpson Audra. “On Ethnographic Refusal: Indigeneity, ‘Voice’ and Colonial Citizenship.” Junctures, vol. 9 2007, pp 67–80.
    [Google Scholar]
  38. Stern Alexandra Minna. Eugenic Nation: Faults and Frontiers of Better Breeding in Modern America. 2nd ed. U of California P 2016.
    [Google Scholar]
  39. Texas Workforce Investment Council. People with Disabilities: A Texas Profile 2019, https://gov.texas.gov/uploads/files/organization/twic/Disabilities-Summary.pdf.
    [Google Scholar]
  40. Tuck Eve, and Wayne Yang K.. “R-Words: Refusing Research.” Humanizing Research: Decolonizing Qualitative Inquiry with Youth and Communities edited by Paris Django and Winn Maisha T., SAGE 2014, pp 223–48.
    [Google Scholar]
  41. ucbdisabilityrights. “Number of Disabled Faculty and Staff at UC Berkeley.” The Faculty Coalition for Disability Rights at UC Berkeley, 27 Feb 2017, https://ucbdisabilityrights.org/2017/02/26/number-of-disabled-faculty/.
    [Google Scholar]
  42. Wong Alice. Year of the Tiger: An Activist’s Life. Vintage Books 2022.
    [Google Scholar]
http://instance.metastore.ingenta.com/content/journals/10.58680/ccc202332669
Loading
  • Article Type: Research Article
This is a required field
Please enter a valid email address
Approval was a Success
Invalid data
An Error Occurred
Approval was partially successful, following selected items could not be processed due to error